The community members listed below are available for contact.
If you are new to the OMS network and wish to obtain information or share your experiences, it is suggested that you write out one e-mail, send it to Community Members Group, and then wait for replies.
The members that do not have e-mail addresses kindly request to receive copies via conventional mail.
Try to be as specific as possible when asking for or sharing information. If you are an opsoclonus myoclonus patient, or affected by someone with the opsoclonus myoclonus syndrome, and wish to be posted on this site, please send an e-mail to New Community Member or conventional letter to ADD ADDRESS, and state specifically that you wish to be posted on the site, and then state the exact information you would like posted.
Group Co-founders |
| Sandra Greenberg, DO 2116 Casa Linda Dr. West Covina, CA 91791 626-315-8125 sandragreenberg@ hotmail.com |
Paula Shaughnessy 35 Lily Brook Court East Amherst, NY 14051 (716) 688-0337 Voice pshaughnessy@adelphia.net |
Connie Quinn 725 North Street Jim Thorpe, PA 18229 (570) 325-3302 Voice clquinn@ptd.net www.geocities.com/Heartland/ Ranch/8971 |
Community Members |
| Aanstoos, Helen 7125 Willow St. Sebastopol, CA 9547 (707) 829-1214 Voice |
Adams, Amanda 112-3120 N. Isl. Hwy Campbell River BRITISH COLUMBIA v9w-2h7 a&badams@telus.net |
| Alberta, Caralyn 2 Donovan Drive Framingham, MA caralyna@comcast.net |
Allan Family 1/19 Cooloola Avenue Lennox Head NSW 2478 AUSTRALIA Phone/Fax: 0061 2 6687 4678 cobra68@hawknet.com.au |
| Alves, Eduardo de Freitas RUA DOS LIMOEIROS Qd-07, Lt-49, Conjunto Cruzeiro do Sul Aparecida de Goiânia, Goiás, Brazil. CEP 74920-210 Teléfono - (062) 3277-7006 Celular - 9696-5342 (add Brazil code) |
Bain, Colleen and Thomas 17 Runyon Street Hillsborough, NJ 08876 (908) 281-4581 Voice colleenbain@solutions.att.com |
| Basinski, Christine 5011 Transit Road Depew, NY 14043 (716) 684-5176 Voice C_Basinski@MSN.COM |
Batra, Erich Lebanon, PA phxsammy@aol.com |
| Batsleer, Maria 3940 Langford Rd New Smyrna Beach, FL 32168 (904) 428-8203 Voice |
Bruland, Mark and Nancy 19305 Saylor Terrace Santa Ana, CA 92705 (714) 7711403 Voice OMSChloe@cox.net |
| Bugin, Maureen 24201 Sugar Hill Rd. Carrolton, VA 23314 (757) 238-2877 Voice daycat@juno.com |
Cammarota, Lisa 5 David Drive Media, PA 19063 (610) 565-5426 Voice Lee152221@aol.com |
| Carter, Jason and Maria Dinicola 8836 Ildica St. Spring Valley, CA 91977 (619) 465-3427 Voice m_dinicola@hotmail.com |
Cecil, Robert and Marie-Josee Trempe 5426 Parry Ave Dallas, TX 75223 (214) 823-0051 Voice vaishnavidasi@yahoo.com |
| Cedro, Jeff and Jessie 419 Maryland Dr. Luling, LA 70070 (504) 785-9615 Voice jcedro@cox.net |
Crawford, Jana 307 Halley #13 Sandpoint, Idaho 83864 (208) 255-2349 Voice summerngram@wmconnect.com |
| Cuppen, Hein hcuppen@xs4all.nl |
DeGrasse, Tim and Marsii (310) 3227083 Voice tmdegrasse@aol.com |
| Detjen, Marion and Stephan Traunsteiner Str. 7 10781 Berlin GERMANY Tel: 030-21967207 Fax: 030-21967208 mdetjen@zedat.fu-berlin.de |
Diebold, Thomas G. 8 Meadow Way Cape Elizabeth, Maine 04107 (207) 799-9346 Voice tdiebold@yahoo.com |
| Drabek, Kerri and Chuck 2708 Grantwood Dr. Toledo, Ohio 43613 (419) 475-9718 XRCHAZ@aol.com |
Estes, Christine ChrstnEstes@aol.com |
| Fennicks, Lavonna 214 B.W. Roberts Street Quincy, Florida 32351 fennicks@yahhoo.com |
Franta, Darron and Katherine Richmond, VA (804) 288-7264 Voice dkfranta@attbi.com |
| Gemar, Jerry and Bonita P.O. Box 349 Lisbon, N.D. 58054 gemar@mlgc.com |
Giblin, David and Sharon 1563 Waterbury Woods Lane Centerville, OH 45458 (937) 885-2134 Voice SGOLFPLACE@aol.com |
| Gish, Scott and Amanda 160 S. Hopkinsville St. Nortonville, KY 42442 (502) 676-9117 Voice algish@vci.net |
Gray, Marilyn 13801 Frisco Cemetary Road Lowell, AR 72745 (501) 636-1160 Voice granmahick@aol.com |
| Green, Shelley and Rick 59 Waite Road Boxborough, MA 01719 (508) 263-5966 Voice greenr@ultranet.com |
Sandra Greenberg, Co-founder 2116 Casa Linda Dr. West Covina, CA 91791 626-315-8125 sandragreenberg@ hotmail.com |
| Grubbs, David and Teresa 1337 Turner Rd. Bellefontaine, Ohio 43311 (937) 592-3834 Voice grubby01@wcoil.com |
Gruver, Ted TEDSUEG@aol.com |
| Guild, Ray and Wendy raywendy@webtv.net |
Hellsaa, Cathrine Åsenhagen 20 D 2020 Skedsmokorset NORWAY jgils@online.no |
| Hemphill, Jana 120 NW Logan Drive Hermiston, OR 97838 ranjan@eoni.com |
Hemphill, Travis 990 East Main St Hermiston, OR 97838 ranjan@eoni.com |
| Herbert, Lucia Zesde Tochtweg 7 2742 KR Waddinxveen HOLLAND HerbertSpruiten@CS.com |
Hussein, S. shussein@springnet1.com |
| Hinds Family North Dakota wired@nccray.net |
Polin, Cindy Mexico City, Mexico cindy.polin@esmas.net |
| Holcomb, Lisa and Ed PO Box 310 Loveland, Ohio 45140 (513) 583-1618 Voice landeh@hotmail.com |
Jackson, Donna hisjoy708@aol.com |
| Jahnssen, Sally 525 E. Hudson St New Florence, MO (573) 835-2123 Voice |
Jaramillo, Larry and Janene Washington (425) 2268918 Voice ciennascar@yahoo.com www.ciennascar.org |
| Jai Kumar Hingorani P. O. Box 5649 Dubai - United Arab Emirates Phone: 971-50-5505946 cnhingorani@yahoo.com |
Nasbauer, Christian cbauer@mi.cl |
| Jai Kumar Hingorani P. O. Box 5649 Dubai - United Arab Emirates Telephone +971-50-550594 |
Jodi Vollbracht & Travis St.Clair 1801 Lincoln Street Hannibal Missouri 63401 1-(573)-231-0608 jodi_vollbracht@sbcglobal.net caringbridge.org/visit/travonstclair |
| Jast, Nicole (360) 779-7933 19304 Widme RD NE Poulsbo, WA 98370 nikoli417@yahoo.com |
Buckle, Marian msmarianb@yahoo.com |
| Jimenez, Richard and Laurie 23 Tavella Place Foothill Ranch, CA 92610 RLRCNI@earthlink.net |
Johnson, Jeni and Chuck 4682 Donna Drive Prescott, AZ 86301 (520) 778-6378 Voice jeni_johnson@yavapai.cc.az.us |
| Kenney, Rhonda Nova Scotia CANADA rhonda@ns.sympatico.ca |
Keyser, Lisa 25 Wanamaker Ave Mahwah, NJ 07430 (201) 529-2701 Voice moonreef@bellatlantic.net |
| Korenko, Lisa and Jared 525 South O'Leary St. Flagstaff, AZ 86001 LJKorenko96@aol.com Jared and Lisa's Home Page |
Lambert, Francie 629 Edward Ave. Cuyahoga Falls, Ohio 44221 (330) 929-3270 Voice ferniecola@aol.com |
| Lambert, Judith 877 N. Deerfield Dr. Canton, MS 39046 (601) 605-1632 Voice Jujolam@aol.com |
Lane, Drs. David and Donna 584 Horse Ferry Road Lawrenceville, GA 30044 doctorsdl@yahoo.com |
| LeFevre, Nadine and Daniel 1 rue de la Bordeneuve 31520 Ramonville St Agne FRANCE daniel.lefevre2@libertysurf.fr |
Scott & Linda Long 8031 Wilfredo Court Naples, FL 34114 snllong@gmail.com |
| Mallon, Georgette and Bill Long Island, NY 516-261-3167 Voice |
Marquardt, Charles and Kathy 736 Winters Street Fort Worth, Texas 76114-2945 (817) 737-3348 Voice cmarquardt2@juno.com |
| Malphus, Sherry 435 W. Home Avenue Hartsville, SC 29550 (843) 3326355 Voice tiggerm@peoplepc.com |
Matthews, Gord and Karen 21 Wimbleton Cresent St Albert, A.B. CANADA T8N-3T8 (780) 419-6080 Voice pipedown@telusplanet.net |
| Meneley, Guy and Nancy 3010 Timbercreek Dr. Alexander, AR 72002 (501) 847-2020 Voice zipzoomzap@aol.com |
Messerly, Marilou merilouie@aol.com |
| Mickey, Leslie and Lindsay 13130 SW Hwy 18 McMinnville, OR 97128 (503) 434-5022 Voice Lemickey5@aol.com |
Miller, Keith N-1 5 40 Woodlawn Drive Fort Atkinson, WI 53538 (920) 563-5389 Voice |
| Moats, Louise LOUMOATS4936@msn.com |
Moore, Randy 1122 Larchmont Lane Oklahoma City, OK 73116 (405) 840-5011 Voice kingllc@flash.net |
| Morin, Rich and Kelley Rhode Island klmorin@cox.net |
Moss, Brett and Michaele Los Angeles, CA michaeleelain@yahoo.com http://www.gabriellemoss.com |
| Nampoothiri, Doctor Sheela Pediatrician G -79 Panampilly NAGAR Cochin 682036 Kerala 0484-324553 Voice INDIA sheelaknpn@hotmail.com |
Noble, Peter 1 Court Close Portishead Bristol BS20 6UX UNITED KINGDOM (01275) 846876 Voice Home (01275) 07776170037 Work Noble.P@btopenworld.com |
| O'Donnell, Penny 12 Middleton Street Thornbury Southland NEW ZEALAND 03-2246109 Voice pennyodonnell@xtra.co.nz |
Ojala, Timo Ylitalontie 13 21100 Naantali FINLAND 02-435-7853 Voice ojalati@hotmail.com |
| Olson, Jen and Tom 400 N Lake Park Ave. OE#7 Hobart, IN 46342 (219) 947-5310 TandJolson@msn.com www.geocities.com/opsomyo |
Olsson, Maggie Lantmannagatan 11A 214 44 Malmö SWEDEN maggie@bonetmail.com |
| Ortiz, Anahi Evelin ARGENTINA lugospaltro@yahoo.com.ar |
P., Steven RASTDO@att.net |
| Paginini, Ronald A. 164 Main Street Milford, MA 01757 (508) 478-4945 Voice (508) 478-0246 Fax |
Pannitto, Wendy 3945 Longfellow Windsor Ontario N9G 2B4 CANADA lisa@rustshield.com |
| Pilbeam,Teresa 12 Piccadilly Place Highland Park Nerang 4211 Queensland AUSTRALIA (07) 55749702 Voice woc00326@tpg.com.au LTCK_PILBEAM@hotmail.com |
Popek, Renee 41 West Hill Rd. Marlborough, MA Meisjeone@AOL.com |
| Powers, Ben and Regina (909) 946-6187 Voice roselace1@aol.com |
Puff, Kerry 951SW 150th Ave Sunrise, Florida 33326 (954) 472-0464 Voice |
| Quinn, Connie, Co-founder 725 North Street Jim Thorpe, PA 18229 (570) 325-3302 Voice clquinn@ptd.net http://www.geocities.com/Heartland/Ranch/8971 |
Raco, Rocco 2385 du Capitaine Bernier Montreal, Quebec H3M 1W6 CANADA (514) 3370801 Voice (514) 8583155 Office Voice RacoRocco@aol.com |
| Ragan, Wendy and Dave Arroyo Grande, CA (805) 481-1038 Voice wragan@aol.com |
Roberta ARobMark@aol.com |
| Robinson, Jim and Kim Olive Branch, MS obrobinson@yahoo.com |
Robinson, Rhonda robby65@earthlink.net |
| Robyn Woodbridge, VA Babydoo21@aol.com |
Rodrigues, Paloma Avda. de Espana,#9, 6--C 24400-Ponferrada Leon SPAIN |
| Rosano, Laura 4818 School Street Santa Rosa, CA 95409 (707) 538-5674 Voice laurarosano@cs.com |
Rosenberg, Mitch and Melanie 870 Camino El Carrizo Thousand Oaks, CA 91360 (805) 375-2979 Voice Fax 805-375-9963 MDRInsure@aol.com |
| Sandoval, Raul and Sandra 15220 Saddleback Rd. Santa Clarita, CA 91387 rsandoval2@socal.rr.com |
Scales, Teri 21250 Sand Point Rd. Redding, CA 96003 (530) 222-2647 Voice Tscales63@aol.com |
| Schaffroth, Ed and Gale 1640 Chase Lane El Cajon, CA 92020 (619) 444-7657 Voice swisnorg@cox.com |
Shaughnessy, Paula, Co-founder 35 Lily Brook Court East Amherst, NY 14051 (716) 688-0337 Voice pshaughnessy@adelphia.net |
| Skuse, Katarina and Brian 616 Island Hwy Campbell River BRITISH COLUMBIA V9W 2C3 brikat@connected.bc.ca |
Smith, Joanne JSmith0923@aol.com JSmith0923@PeoplePC.com |
| Soda ARGENTINA lautarosoda@hotmail.com |
Stadelmann, Renata and Jean-Claude Alte Zofingerstrasse 37 4663 Aarburg SWITZERLAND 41 79 6632436 Voice joy@goefi.ch |
| Stein, Ray and Linda PO Box 1405 Mead, WA 99021 (509) 467-0838 Voice raystein@uswest.net |
Steinarsdottir, Kristin Bleikjukvisl ll 110 Reykjavik ICELAND 587 2923 Voice stina@ismennt.is |
| Theodoridis, Tammy Oshawa, Ontario CANADA tamtheodoridis@rogers.com |
Thomason, Deborah and Clive Weston 151 Taylors Mistake Rd Christchurch 8 NEW ZEALAND 0064-3-326 5517Voice c.weston@xtra.co.nz |
| Tiziano, Menini Via A. De Gasperi 1A 37050 Vallese (Verona) ITALY 0039-45-7134118 Voice 0039-45-7134058 Fax sebapop@libero.it |
Tran, Helen and Phillip Corona, California (909) 272-3788 Voice ptran16882003@yahoo.com |
| Vaotangi Geelong, Harold and Jackie Victoria AUSTRALIA jacquelinev@bigpond.com |
Vivas Busquets, Marjoleine and Andres HOLLAND vivasbusquets@hotmail.com |
| Watson, Debbie 303 Augusta Drive McHenry, Illinois 60050 (815) 385-4847 Voice miken@imaxx.net |
Watson, Sandy 18 Pear Tree Place Little Rock, AR 72209 Sandwat12@aol.com |
| Werning, Carolyn 3 Highness Drive Uxbridge, MA 01569 (508) 278-0175 Voice |
White, Bianca and Rick 993 Bailey Rd Woodstock, GA 30188 ricbieva@bellsouth.net |
| Whitehead, Amanda 1128 Calvados Covina, CA 91722 (626) 3393191 Voice AVWhitehead@cs.com |
Wilson, Karen 30 Raley Drive Wynne, AR 72396 Voice (870) 238-0706 kvwilson@crosscountybank.com |
| Will and Julie Thomas Asheville, NC 28803 julie.robinson@gmail.com walterthomas.org |
Campbell, Alexandrea and Robin Storm_0031@cox.net |
| Wright, Ellie and Jim 1319 S. Spaulding Ave Los Angeles, CA 90019 (323) 935-6466 Voice and Fax wrighton62@msn.com |
Wyatt, Marilyn and Cameron Munter 3214 Northampton St. NW Washington, D.C. 20015 (202) 537-9281 Voice (202) 537-9280 Fax wyatt_munter@compuserve.com |
| Wytas, Jake Portland, Maine ajww35@hotmail.com |
